This week's Awareness Week Down syndrome, a long campaign for a week help people understand the complexities of living with the disease. Doctors continually seek treatment options to improve the lives of people, especially children living with Down syndrome, which includes studying whether stem cells from cord blood are viable sources of treatment.
A mother, Lucienne Cooper is launching his own support group for families who have a member with Down syndrome. The group, Get on Downs organizes meetings between families with Down syndrome experience, offering advice to new families that manage the complexities of the disease.
Lucienne son, Billy was diagnosed with Down syndrome as a baby, but she was given little support in learning how to help Billy living with the disease. Lucienne was dissatisfied with a pediatric appointment, and was forced to learn on his own adaptation mechanisms.
She said the goal of Get on Downs is to help other mothers avoid passing through this struggle to adjust their lives.
"What motivated me was how I felt when Billy was born, not knowing anything about disability and even less of Down syndrome and the feeling of relief I am when I met the girl of my friend who was four at the time. "
meetings will be held in the hometown of Lucienne Carshalton, a suburb in the metropolitan area of Greater London. Get on Downs on Thursday, with the first official meeting scheduled on March 20 to commemorate syndrome Awareness Week Down. Get on Downs is also supported by many other charities dedicated to improving the living conditions of children with disabilities or disorders.